Got connective tissue issues? You’re not alone.
Held Together Support Group is a community for individuals and families with underlying connective tissue disorders, including:
Ehlers-Danlos Syndrome (EDS) and subtypes
Hypermobility Spectrum Disorders (HSD)
Other connective tissue disorders (including but not limited to: Alport syndrome, cutis laxa, fibromuscular dysplasia, lipedema, Loeys-Dietz syndrome, Marfan syndrome, mixed connective tissue disease, osteogenesis imperfecta, Stickler syndrome)

Many individuals in this community also experience related conditions, including:
POTS / Dysautonomia
Mast Cell Activation Syndrome (MCAS)
We also welcome those navigating co-inflammatory triggers that may impact these conditions, including:
Environmental Acquired Illness (mold-related illness), tick-borne illness, co-infections, PANS/PANDAS, and other inflammatory contributors.

🤍 Who This Group Is For
Whether you are:
Diagnosed
Misdiagnosed
Undiagnosed
Or suspected but not yet labeled
You are welcome here.

🕕 Meeting Times
1st Friday of every month
👩‍⚕️ Adults (18+)
6:00 – 7:00 PM
🧒 Kids & Teens
7:00 – 8:00 PM

💻 Join via Zoom
🔗 https://us06web.zoom.us/j/81096421581?pwd=hKainbA3g9I4OcUXObk8KekwVA0PBg.1
Meeting ID: 810 9642 1581
Passcode: 9yRsCD
The same Zoom link is used for both sessions. Please join at the time appropriate for your group.

📍 Join Us In Person
Be-Well Medicine
4241 B Street, Suite 304
Anchorage, AK 99503

📣 Stay Connected.                                                                                                                                                                                 Keep an eye on our Facebook page for updates, guest speakers, and special events.
We will also be offering additional meetup opportunities across Alaska during the summer months.

Facebook—https://www.facebook.com/BeWellMedicine

Website—http://www.be-wellmedicine.com

✨ What to Expect

This is a relaxed, supportive space where you can:
Ask questions
Share experiences
Learn from others
Or simply listen
Even showing up is a step forward.

Peer support and education only. This is not personal medical advice.